I know everyone’s treatment experience is different, but I have to say that our maintenance experience, thus far, is EXCELLENT. Like, deserving an ALL-CAPS excellent. I think that, slowly, slowly, my mind is moving into a new space where I can just accept that, today, our life is very good. There is still that little voice saying, “Watch out for falling rocks! Fevers! Relapse! Infection! Death!” but, I can honestly say that, these days, that voice is weak and whispery. I think I am finally settling into a place where I understand my total inability to control our future and I am learning to just take comfort in today’s pleasures. I am certain I will still be gripped with terror from time to time. I will still look at my child and feel that sudden urge to fold her up into a tiny, portable package and shove her back in my swollen belly, ensuring that she is now safe, warm, and cancer-free.

As with any mention of my belly, I am compelled to immediately flip through 100 photos of Elsa, inside. Safe and warm. And look! She and Stella were besties back then too!
Our daily routine and activities have not changed too radically since maintenance started. Throughout treatment, we’ve stayed as busy as possible and tried not to be too restrictive when her ANC is over 200. We’re having more play dates now, but our usual rounds of the library, grocery store, parks, etc. remain the same.
What has changed though is our daily dosage of enjoyment. Life with a two-year old is challenging, but feels surprisingly effortless now. Anyone who has seen me over the last two weeks knows that I can’t stop exclaiming, “She feels so good now! She must have felt so awful for the past 9 months!” She’s like a totally different kid now. Smiles in the morning instead of screaming. Running around the house instead of clinging in my arms. Stripping her clothes off in the park instead of, again, clinging to my body. Happy and chatty in the grocery cart at the store instead of yelling and impatient (or at least now the yelling is happy yelling). When we are out and about, I feel this incredible sense of breezy relief.
I have posted a bunch of pictures of our new, happier life over at the 366 Project as well. How’s THAT for a more pleasant update?

















