Monthly Archives: February 2012

Day 220: A better kind of busy

Usually, I would beat myself up a little for updating so infrequently, but I must say that the reasons for my writing absence are all great.

1. We are busy! Elsa’s ANC has been high enough that we are exploring the world with very few restrictions right now. Aside from having clinic/chemo every 10 days this cycle, and going through 12 bottles of purell each week, we are living a normal, fun life.

2. I am busy Losing to Win! I joined a totally absurd (in a good way) weight loss program at the YMCA (Lose to Win!) with weekly personal training / weigh-ins and it has been just enough motivation to kick my butt into a healthier gear. I’m spending a lot more time thinking about/planning the foods that we eat and I’m making time for work-outs, even if it means peeling off some of the velcro that sticks Elsa to my body most of the time. Elsa hasn’t had much of a problem with the de-sticking process; the better she feels, the less she needs me so physically. Everyone involved feels better, I think. I’m packing in as much self-care as I can, while the waters in our life are calm. John, too, is trying to get to the YMCA more frequently and we are taking turns taking alone time for ourselves. Next phase of the re-building process should probably be that John and I take time for ourselves, as a couple. Slowly, slowly, we’re working on it.

3. Perhaps some of you may have noticed a new tab across the top of the blog that says “366 project.” I joined up with a Facebook group where we are all aiming to take a picture every day this year. I’ve been posting those photos over at:

It’s been a fun project and I’m enjoying knowing that, on days when I’m too tired to write anything, at least I have a tiny, flickering token from our day that reminds me that we were alive every day this year. Hopefully, I will turn them into a printed book for Elsa one day.

Life is great today. I have such a hard time not adding the caveat, “The other shoe could drop any second! She could be sick tomorrow! I know everything can fall apart at any second!” That’s something I’m working on.

Life is great today. There. That’s it. Done.

………

Wait. Not done yet. Here is a funny little montage of approximately 45seconds in the emotional life of Elsa. If you’re wondering why we are eating hot dogs in the car, it was a little too windy for the picnic I had planned at the park, so we ate in the car instead. Minus the brief meltdown over a stolen goldfish, it was a lovely picnic (I couldn’t figure out how to make it bigger, but if you click on it, a larger version appears):

Fulfilling a request

We got a request from our one of our super besties for another “Elsa laughing” video. There’s not a lot of belly-laughing, but I think this will suffice:

Day 209 – 213: The never-ending post

Wow. I have sat down to write this post everyday for the past 5 days and every time, I manage to get a few more sentences down. The great despair of my blogging is that I’m never able to finish a post in one sitting! I’m a little bit of a perfectionist and I like my writing to have some semblance of “flow.” Unfortunately, my days are not really conducive to any sort of “flow.” Such is life with a two-year old.

This post started out saying, “Everything is great!” and then it segued into, “Everything is great but there is a shortage of cancer drugs, and that is so scary!” and then it turned into, “Looks like the drug shortage will hopefully resolve before it affects us, but thank you for writing your legislators on our behalf!” Now, the post is just a mess.

All in all, we’ve had a couple of great weeks. We’ve had a schedule packed full with play dates, YMCA visits, library story-time, and playing outdoors (thank you 50 degrees in February!!). We even went to the children’s museum last week [i.e. the germ palace] and, so far, we haven’t had to pay for it with a fever. Clinic visits have been long but uneventful and tolerable for all parties involved. Interim Maintenance #2 is treating us well. Even more exciting is that frontline treatment is almost over! We have three more appointments in this cycle (IM#2) and then we will start maintenance. The start of maintenance is a little bittersweet because she will have to contend with five days of steroids, but it’s a pretty big deal that we will be starting the LAST cycle of treatment (ignoring the fact that it is a 2-year cycle).

I have so much more to write! How do professional bloggers with kids find the time to write!? Less sleep? Maybe I should sleep less . . . ? Elsa’s waking up from her nap, so I guess I will just leave it here for now or else deal with yet another unfinished post.

Finish.

Day 201: For now, better days.

Despite whatever melancholy wormhole I was writing from last post, life really has been exponentially better these days. Elsa had clinic yesterday and her ANC was 1200! She started the next phase of treatment (Interim Maintenance II) with doses of vincristine, methotrexate, and a spinal tap with spinal methotrexate. Totally absurd to say, but it really was an easy day. When on earth did THAT become “easy” for us?! Easy it was, though. I think the stress of delayed intensification coupled with the 6-day inpatient isolation has toughened us up. Just 6 hours without food or drink, three chemos, a sissy spinal tap and then we get to go home? No sweat! (Pictures are forthcoming)

With an ANC over 1000, I’ve opened the floodgates for playdates, library story time, shopping, etc. We even re-joined the YMCA and I am going to start leaving Elsa in the babysitting room there. Workout/sanity bolstering for mom and socializing, independent, normal-kid, toddler time for Elsa. This is a huge step for us. Huge. Normal life: RESUME! Granted, it is the height of flu/winter sickness season so I’m trying to take as many precautions as possible: excessive handwashing/purelling, antibacterial wipes on everything, and staying FAR away from anyone with a runny nose/cough (some may call it “running for the hills”). Life has been shitty long enough though and Elsa and I are tired of house arrest. We are venturing out, no matter what. Wish us luck; We probably need it.

Video proof of our fun times these past couple weeks. Video proof that delayed intensification is now a distant memory (at least for Elsa) and playgrounds and dog torment are our current priorities.

P.S. If anyone knows the person who is in charge of “sainting” dogs, please send them our way.

Back on the playground: